In the News

07 March, 2024

Opioid Usage Increasing In Patients With Fibromyalgia In Recent Years

Although clinical guidelines do not recommend opioids for patients with fibromyalgia, data revealed a progressive increase in opioid prescriptions during the last 12 years, according to a study published in BMC Musculoskeletal Disorders. Although opioid usage was linked to concomitant non-opioid drug consumption, it was not linked to the severity of fibromyalgia symptoms.

06 March, 2024

A Blood Test Will Allow A More Reliable Diagnosis Of Fibromyalgia

Fibromyalgia is a chronic disease that affects 6% of the population worldwide and is characterized by widespread muscle pain and fatigue. The variety of symptoms can be easily confused with other disorders such as rheumatoid arthritis, systemic lupus erythematosus, osteoarthritis, or chronic back pain. This means that reaching a diagnosis is neither easy nor quick and, therefore, impacts the quality of life and mental health of those suffering from it. To carry out the study, the research team collected blood samples from three different groups: people suffering from fibromyalgia, others suffering from similar rheumatic diseases and a third group without any of these pathologies, which served as a control group. Used to work as. They applied a combination of techniques to isolate and analyze specific chemical signals in the blood that could help differentiate fibromyalgia from other diseases with similar health effects, with the aim of opening up a more accurate and faster diagnostic path.

06 March, 2024

ME/CFS Experts Express 'Dismay' At Aspects Of NIH Study

Two physicians who treat patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have issued a statement expressing gratitude for the recent National Institutes of Health's "deep phenotyping" study of the condition that identified several distinct biologic abnormalities but also criticized some aspects of the study and the way the findings were reported.

06 March, 2024

Is Chronic Fatigue Syndrome All In Your Brain?

An NIH study expands on a body of research locating objective markers of ME/CFS in the brain, the immune system, the gut, and beyond.

05 March, 2024

Scientists Now Have A Better Understanding Of Chronic Fatigue Syndrome

Precisely how many people are currently living with myalgic encephalomyelitis/chronic fatigue syndrome across the nation is a subject of some debate. The CDC estimates the figure at 836,000 to 2.5 million, with 90% of those being undiagnosed. The nonprofit organization Solve M.E. puts that number higher: between 5 million and 9 million. Whether it’s just over 800,000 or 9 million, it’s a harrowing experience for anyone living with the condition — one which has challenged doctors and scientists looking for ways to alleviate it. Our understanding of chronic fatigue syndrome might be expanding with the publication of a new study that explores a wide variety of causes for the condition. “[T]he clinical phenotype is poorly defined, the pathophysiology is unknown and no disease-modifying treatments are available,” the study’s authors write. And one of the goals of the study involved finding a diagnostic biomarker for the condition.

05 March, 2024

Yet Another Woman With Severe ME Has Been Sectioned And Abused By An NHS Hospital

A young woman living with severe myalgic encephalomyelitis (ME) is being catastrophically neglected by an NHS hospital. Millie’s story in itself is shocking. Medical professionals appear to be ignoring official guidelines into the disease – going so far as to section her under the Mental Health Act, and limiting her mother’s visiting rights.

05 March, 2024

Uncovering The Mystery Of ME/CFS: A Groundbreaking Study Sheds Light On The Diseases Origins – Press Stories

Jennifer Caldwell, a participant in a National Institutes of Health (NIH) study on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), shares her story of how a weekend swimming trip in 2014 led to a bacterial infection and the onset of this debilitating condition. ME/CFS affects over 4 million U.S. adults, with no approved treatments currently available. The NIH study, recently published in Nature Communications, highlights distinct differences in the bodies of individuals with ME/CFS, showing that it is a biological illness with variations in brain function and the immune system. Despite the challenges faced during the study due to disruptions caused by the COVID-19 pandemic, scientists remain hopeful that their findings will lead to the development of treatments for ME/CFS in the future.

04 March, 2024

New ME/CFS And Long Covid ‘Studies’ Show Junk Science And Media Churnalism Are Alive And Kicking

Two studies – ME, long Covid ones – have been projected into the spotlight thanks to the corporate media. Both studies claim to be groundbreaking in terms of research. However, the reality is both are little more than junk science promoted by people with hidden agendas, and lapped up by churnalists. Meanwhile, it’s left to chronically ill and disabled patients to call the studies out for what they are – at worst, potential scientific fraud. Sadly, this is nothing new. However, the implications of this trash research could still be far-reaching.

04 March, 2024

Long-Term Digestive Health Implications Of COVID-19: A Call For Ongoing Care And Monitoring

A recent study has offered new insights into the long-term impact of COVID-19, warning of persistent risks of serious digestive conditions even months after active infection. This discovery underscores the broader health implications of the virus and the critical need for continuous monitoring and care for those affected.

04 March, 2024

Yvie's Experience With Chronic Fatigue

We had a question come through asking for more info on Yvie's experience with Chronic Fatigue Syndrome and how she's learned to deal with it, especially when balancing her work.